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Getting
well is a process that began for me a long time ago. I never expect to finish.
Given different responses from responsible adults and health care professionals
in my life my journey might have been very different. In this article, I want to
share what did happen and how I actually am getting well. At the conclusion of
the article I will share some perspectives on how I think my life could have
been different (and a lot of pain averted) and how symptoms of depression and
manic depression might be more appropriately dealt with to keep us from becoming
"chronic mental patients". ( I feel that psychiatric disorders, as
with all disorders have a physiological and a psychological component. Response
to particular treatment, management and self help scenarios varies with each
individual. there is no one answer for everyone. We have to each search out the
right path for ourselves.) When
did my mood instability start. I think it began when I first felt that I was
different from other kids in school. I didn't know what was different about me,
but I knew something was different. Was it because my friend was hit by a car
and killed when I was walking home from school when I was five years old? Was it
because my mother was in a mental hospital? Was it because I never felt wanted,
affirmed or loved? Was it because there were two older male relatives who
harassed me and molested me for many years? Was it because a caretaker kept
telling me all the things that were wrong with me? As I look back at pictures of
me when I was a little girl, it is clear that I looked like any other kid. What
was it in my mind that made me different? Sometimes
I gave in to the despair and spent as much time as I could, alone in my room,
crying uncontrollably. At other times I responded to the bleak circumstances of
my life by being a "too bright and cheery" overachiever. There never
seemed to be any middle ground. Even
back then, as a child and as a teen-ager, I was looking for answers-ways to feel
better. I became an avid reader of self help magazine articles and books. I
tried diet and exercise. I constantly tried to achieve an elusive perfection.
Nothing helped much. But
I got by. When I finished school, I did all the things women were supposed to do
in those days. Go to college, get married and have a family. Sometimes
everything seemed so hard. Other times everything seemed so easy. Was everyone's
life like this? Trying to keep going or going too fast. Then
there came a time when the depression got too deep. I couldn't get out of bed,
much less take care of my five children and administer the small private school
I started when I was feeling "up". I went to see a psychiatrist. He
listened to my story and said there was no question about it. I was manic
depressive like my mother. He said lithium three times a day would take care of
the whole problem. What an easy answer! I was thrilled. For
ten years I took my lithium and continued to do everything I could to improve
myself. My life continued to be very chaotic. But my ups weren't so up, and my
downs weren't so down. Then I was overtaken
with a dangerous episode of lithium toxicity. Why hadn't anyone ever told me
that if you keep taking your lithium when you are dehydrated from a stomach bug,
you can get lithium toxicity? Come to think of it, I knew very little about this
substance I was so religiously putting in my mouth. Although I was doing
everything in my power to keep myself well, I still felt that the ultimate
responsibility for my well-being was in the hands of my psychiatrist. I was
totally trusting that he was making the right decisions in my behalf. After the experience
with lithium toxicity, my body didn't seem to want it anymore. Every time I
tried to take it, the symptoms of toxicity returned. And without it those deep
dark depressions and periods of high achievement returned. Only now they were
overwhelming. The depressions were dark and suicidal. The mania was totally out
of control. Psychosis became a way of life. I lost my job. Friends and family
members backed off. I spent months on the psychiatric ward. My life felt like it
was slipping away. They tried one drug after another, usually several at a time.
Nothing seemed to bring me back to life. Through the haze I
was searching for answers. I wondered how other people with these kinds of
episodes get by. They couldn't all be like me-unable to work and almost unable
to take care of myself. I asked my doctor how people with manic depression get
by on a day by day basis. He told me he'd get me that information. I looked
forward to my next visit with great anticipation, fully expecting to find some
answers. What a disappointment! He said that there was information on
medication, hospitalization and restraint but nothing on how people live their
lives. I took this dilemma
to my vocational rehabilitation counselor who was trying desperately to find a
place in the world for this mentally ill woman. I described to her a dream. A
dream of finding out how others with depression and manic depression keep
themselves stable. To my surprise she supported my ideas. With her as my back-up
and the help of a Social Security PASS plan, I began a study of 120 people who
agreed to share their strategies for keeping themselves. As information
started coming in, my foggy brain got scared. How was I going to compile this
data and put it into any kind of format that could be useful to me and others
like me? I kept plugging away. The information was so fascinating that I was
drawn to it. Once again I had something meaningful to do. I think my return to
wellness may have started there. The first and most
important thing I learned from compiling this data was that there is lots of
HOPE. Contrary to popular belief, people with recurring episodes of depression
and manic depression, get well, they stay well for long periods of time and they
do what they want to with their lives. This message of hope, which I had never
heard, must be spread by all of us who know it is true. I soon became aware
of a clear difference in responses from study participants. Some people were
blaming their instability on everyone else. "If only my parents
hadn't.....", "if only my doctor would try.....", "if only
my fourth grade teacher had.....", etc.. Mood instability was controlling
these people's lives. Others were taking responsibility for their own lives,
advocating for themselves, educating themselves, getting the support they need,
etc., These people were getting well and staying well. You can bet I made an
about face at that point and joined the ranks of people taking responsibility
for themselves as fast as my brain could adapt. That was the first giant step on
my way back to life. Then I learned from
these people who had so much knowledge to share, that I had to advocate for
myself, no matter how difficult that might seem for someone with wildly
oscillating moods and self esteem in the basement. I began thinking about what I
wanted for myself in terms of treatment, housing, relationships, support, work
and activities. Then I figured out strategies to make these things happen and
went for it. Things began to change in my life and they continue to change. My
life gets better and better. As many others have
done, but I hadn't, I began to educate myself. I read everything I could about
depression, manic depression, medications, and alternative treatments. I
contacted national, state and local organizations for help in this process. I
told my health care professionals what I wanted and expected from them rather
than depending on them to make decisions for me. I began to take better care of
myself. I developed a plan that instructed certain people to make decisions for
me in the event that I couldn't make them for myself, and told them how I wanted
to be treated in these circumstances. Through this effort I
discovered that, even though I had been hospitalized at several major medical
centers, no one had bothered to give me a complete thyroid test. I found that I
had severe hypothyroidism (hypothyroidism causes depression) which needed to be
treated. Once that treatment began, my mind really began to clear and my
progress was remarkable. I got connected with
the national movement of psychiatric survivors. I began attending meetings and
conferences with other people whose journeys had been similar to mine. I felt
validated and affirmed. I began teaching in earnest the skills I was learning
through my study to others who could benefit like I was. With the help of
several excellent counselors, co-counseling and numerous self help resources, I
undertook the task of getting to know myself and my symptoms in a successful
attempt to discover early warning signs of impending mood swings and, in effect,
cut them off at the pass. At first I developed detailed daily charts to assist
me in this process. As I got to know myself better, I found that I didn't need
to use the charts anymore. Now, as I notice
early warning signs I alleviate them with a variety of simple, safe, inexpensive
or free, effective self help techniques including stress reduction and
relaxation techniques, talking to a supporter, peer counseling, doing activities
that I enjoy and that I know make me feel better, exercise, improving my diet,
and simplifying my life. I have discovered my
diet really affects the way I feel. If I overload on junk food, sugar and
caffeine, I soon find myself feeling lousy. If I focus my diet on high complex
carbohydrates (six servings of grains and five servings of veggies a day) I feel
great. I have gotten in the habit of keeping a variety of easy to fix healthy
foods on hand so I won't succumb to the junk food trap when I don't feel like
cooking. I try to get outside
for a walk every day. This gives me two things-exercise which always makes me
feel better, and light through the eyes which I have found also helps. Light has
been a big issue for me. As the days get shorter and darker in the fall, my
winter depression begins to set in. I have virtually eliminated these winter
depressions by getting outside for at least half and hour a day, and by
supplementing my light for two hours in the morning with a light box. I got rid of my
electric blanket and substituted a warm comforter after discovering the
hazardous effects of being wrapped up in an electromagnetic field all night. I
noticed another positive upswing in my overall wellness after making this
change. I finally realized
that I create my thoughts and I can change them. I have worked hard at changing
old negative thought patterns that increase depression to new, positive ones. I
think I will always be doing this work. For example, when my mother was
depressed, she would often repeat, over and over, thousands of times a day,
"I want to die". When I got depressed, I started doing the same thing.
The more I said "I want to die", the more suicidal I became. I finally
realized that if I said instead, "I choose to live" I felt much better
and the suicidal ideation decreased. Another thought that
plagued me was "I have never accomplished anything". I decided to take
a different approach. I decided I had accomplished a great deal. For a while I
became quite fanatical about making long lists of things I had accomplished.
Everything from getting up in the morning and completing kindergarten to two
masters degrees and raising five kids was on the lists. After a while I realized
I didn't have to make these lists anymore, that this negative thought was s no
longer a factor in my life. When negative
thoughts become obsessive, I wear a rubber band on my wrist. Every time I start
thinking negative thoughts, I snap the rubber band. It reminds me to defocus on
more positive aspects of my life. A rubber band on my wrist is a cue to family
and friends that I am working on obsessive thoughts. Using cognitive
therapy techniques to reinforce positive self talk, by treating myself better
and better, and by spending time with family members and friends who affirm me,
I have raised my self esteem out of the depths. When I notice I am starting to
feel badly about myself (an early warning sign of depression) I repeat over and
over my own personal statement of my worth. It is "I am a wonderful,
special, unique person and I deserve all the very best that life has to
offer". Working with several
exceptional counselors, alternative health care practitioners, and using a
variety of self help resources, I have learned a variety of stress reduction and
relaxation exercises. I use these techniques daily to increase my feelings of
well-being, reduce anxiety and help me sleep. When I notice that I am having
early warning signs of depression or mania, I increase the number of times a day
I do these simple deep breathing, progressive relaxation exercises. I have learned that I
need to have a structured support system that I can call on when the going gets
tough, as well as to share the good times. I have a list of five people (I keep
it by my phone) with whom I have a mutual support agreement. I keep regular
contact with these people. We often get together for lunch, a walk, a movie or
some other activity we both enjoy. When things are getting difficult, I call on
them to listen, give me advice and help me make decisions. And I do the same for
them. This has been a tremendous boon to my wellness. I met some of my
supporters through regular attendance at support groups for women and for people
with mood disorders. Others are family members or old friends with whom I now
have a mutual support agreement. I find that people
are more willing to be my supporters now that I work hard at taking
responsibility for my own wellness. They like the mutual support arrangement-it
has to go both ways. When I realize a supporter is not asking as much of me as I
am asking of them, I treat them to lunch or a movie, buy them a small gift or
help them a chore. My supporters like to
know that they are not the only person I am depending on. They know that if they
are having a hard time and can't be any help to me, there is always someone else
I can call. My counselors have
helped me let go of some poor social skills that have also made it easier for me
to have a strong support system. My supporters include
an excellent team of health care professionals that include a top rate woman
counselor, an endocrinologist ( a physician who specializes in diseases of the
endocrine gland system), several body workers and alternative care consultants.
I keep reminding myself, I am in charge. If someone suggests a possible
treatment, I study it thoughtfully before making a decision to proceed. I use peer counseling
a lot. I need to use it more. It really helps. I get together with a friend for
an agreed upon length of time. We divide the time in half. Half the time I talk,
cry, fuss, shine, shake, whatever feels right. The other person listens and is
supportive but never critical, judgmental and refrains from giving advice. The
other half the time is their time to receive the same service. The sessions are
totally confidential. Focusing exercises
were recommended to me by colleagues in England who use them regularly to avoid
episodes of depression or mania. They are simple self help exercises that help
me get to the root of my feelings. Whenever I start to feel overwhelmed I lay
down and relax. Then I ask myself a series of simple questions that lead me to
new insight. I often suggest others read a focusing book or going to a focusing
seminar. I included a chapter on focusing in my latest book. One very important
decision I made is that I will never again consider suicide or try to take my
own life. I have decided I am in this for the duration and I will face whatever
comes up. And since I made that decision I have had to do just that many times.
I have reinforced that choice over and over again and do not allow myself to
dwell on suicide. I look back on my
life and think about how things might have been different.
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